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October 16, 2008

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Comments

Audrey

I support your hard decision. I hope that the doctors can give you the same.

Dianna

I can completely relate! My Zoe went through similar issues with her vaccinations at 18 months. If you need to talk to someone about your daughters therapy, I am here. :) This is why we homeschool, well one reason... LOL

Mandaleigh

That's really educational, and terrifying. My own child was also born in 2001 and so would have recieved the same dangerous chemical as Abbi. If I had known your story then I would have definately taken it into consideration. I hope that you will consider approaching one of the larger parenting magazines--American Baby, Parents, etc. or even one of the "organic" magazines as a way of putting your story out there.

Amy

I totally understand and respect your decision to not vax. I hope that Abbi gets her release and gets in school as that will be a world of difference for her! Plus you guys as well! They cant deny her that because she has no vaxing. That's just wrong. Best of luck to you and your family! =) )))HUGS(((

Amy

I also want to say my oldest was born a month after Abbi in 2001 as well and now we suspect a form of autism in him as well after talking with his dr. We are currently awaiting our appt with our Dr in Texas to do further testing. I feel like something is wrong but cant figure it out. I'm glad you put links in your blog for others to reference to for info. It helps a lot. It's almaring there are soo many more being diagnosed autistic or with similar issues after getting vax'd.

Tammy

A big hug to you all. I thank you for all the research you have done and I respect your decision. We vaccinate and while I do not regret doing so (and will continue) I am glad I have read your post as I feel I am more informed.

Mind Body Shop

Success is the good fortune that comes from aspiration, desperation, perspiration and inspiration.

Mind Body Shop

Success is the good fortune that comes from aspiration, desperation, perspiration and inspiration.

Caitlin

This is such a difficult issue right now. Your story is so touching. Of course I want whatever is best for my future children, but it is all so confusing. My husband is working in the Infectious Disease department of a pediatric hospital and his research may someday lead to another vaccine. My mom is the principal of an elementary school that is currently experiencing a whooping cough outbreak which is probably due to a combination of unvaccinated students (she recently discovered that some parents have falsified vaccination records for their children) and an influx of undervaccinated immigrants in the surrounding community. I am the nanny of an almost two-year-old and a four-year-old. My "big girl" just went to the doctor for her four-year-old check-up and got 4 shots (one in each arm and one in each thigh). The injection site on one of her thighs swelled up to the size of a baseball and only a week later is the redness going away. My next-door baby just received three or four shots at once and then spent the next several days feverish and trying desperately to recover. While her immune system was learning to fight these new diseases she got a cold. And now her three-year-old sister has it too. When I told the mom about your story she said that she will ask her doctor next time if she has to get so many shots at the same time.

Taking all this into account (plus the fact that I am not yet actually a mother and maybe everything will change then) I think my best choice is to vaccinate, but only one at a time. Even if that means that I have to bring my tiny child into the doctors office every few weeks for his or her first months then that is the sacrifice I will have to make. Four or five shots does seem like a lot of near-disease to be pumping into such a tiny body.

Parenthood is just one difficult decision after another.

Juli

I don't vaccinate either, and I have never experienced what you have. I just felt the side effects way out did the benefits. Not one of my three kids has ever had a vaccine.

Diane

Thanks for posting this - and hugs.

I'm sending the link to Katie.

kate

If one of my children had had that sort of reaction, I probably wouldn't vaccinate either. However, I still vaccinate my kids, because with no history of bad reactions in my family, I think being unprotected against polio is more dangerous than the potential risk of the vaccines.

Mary

I am an OT who specializes in pediatrics and autism. I found your blog while searching under sewing. I understand your worries and concerns regarding vaccines, especially with what happened to your older daughter. There are 2 other factors to look at with your younger daughter. I followed some genetic research of a doctor in N.C and he was following genetic links with autism. So, look at weither your younger daughter is showing any signs of SI issues and that will give you a hint as to how the vaccines can have an impact. ALso giving her the vaccines in a very spread out fashion. They can even break up the MMR vaccine, so it is not a mega dose vaccine. Just some things to think about. You are welcome to e-mail me if you have any questions or just ignore this. I know it is a very sensitive subject. Good luck with everything
Mary

mark

Thank you for this very wise post

Mark
somethingbeginningwitha.blogspot.com

Mary Neffinger

Working in scientific research, I always feel like I have a pretty decent understanding of what is going on in medicine (what treatments/drugs are necessary or safe). And then something like this always comes to my attention. I am so sorry for what looks pretty convincingly avoidable. Just more reinforcement to do your own research for your's and your children's health.

Dawn

I find it SO interesting to research the diseases themselves, after correcting for the way statistics are presented so that you can do direct comparisons (incidence per thousand, or percent or whatever...just all one way, instead of trying to compare 1 in 30,000 to 0.1% - have a look the next time you read about a vaccine or a disease...the numbers are never presented consistantly)

For instance. Polio. Some 90% of people who contract polio virus show NO symptoms at all. None. And it's extirpated in North America. And the cases that HAVE occurred in the last 20 yrs have largely been OPV-derived. Yup. CAUSED by the oral polio vaccine. The vaccine of choice in the third world countries where polio still exists. (Hmm) All of these facts you can find at CDC and similar main-stream, respected sources.

I've been considering doing my master's degree on this very subject. There's such a huge need for a plain, factual presentation of the facts as they are known, non-fear-mongering on either side of the issue, so that a true risk-benefit assessment can be done. The posters from the pharmaceutical companies are terrifying and inaccurately represent the actual risk. The frantic anti-vaccine advocates are equally convinced that terrifying parents is the best way to get their message across. I've had doctors tell me "facts" that directly contradicted medical journals, vaccine manufacturers' information, and CDC and the like. Either they don't know the information, they're using what the pharmaceutical reps tell them, or they are outright lying to try to scare me into vaccinating. I don't know which, and would like to examine the whole question of it.

Thanks for your post.

cindy

Oh my,I have been cruising through blogs that I have saved as my fav's tonight, the ones I have not read in a while. I read your post title. Ahhh. My heart so goes out to you...I am a school nurse. I am dictated in my job to call parents who have not vaccinated and encourage them to do so. BUT...I don't. I call and tell parents these are what the State requires, if you don't want to do it, all they need to do is sign a Personal Exemption. No questions asked, no guilt, just sign and THAT's it. I have sat there looking at that sheet of paper with all the warnings before I vaccinated my girls and with each and every one I said a prayer. You just never know what child will react to certain vaccines. I pray for Abigail and that this is something that she will look at in her past, nothing more. Getting vaccinated is a wonderful thing, BUT it is NOT 100% safe. What a horrible double edged sword for a parent. I think now, that I am educated and older I would be even more afraid to vaccinate my kids. I just don't know the reasons but WHY can't they make vaccines with inocuous side effects? God Bless ...

Amie

Hello, I just read your newest post. All I can say is WOW. I just learned so much reading that. I've heard a little bit about vaccines and autism but I did not really grasp what that meant. Thankyou for taking the time to educate. I am just heartbroken for Abbi. And that you have moved across the country to be treated like that by the school system. Shame on them! I'm praying that God opens a door for her at His soonest convenience. Bless you guys, Amie

sarahspins

We don't vax either, and I wanted to let you know you can request the paperwork for conscientious objection online - https://webds.dshs.state.tx.us/immco/affidavit.shtm

It's really easy, and you usually get your forms within a week (they're mailed from Austin)

You can order *extra* forms too and just hang on to them since they're not dated, but they do have to be notarized to be "official". It's frustrating if you're not prepared in advance (I recommend having some extras - the schools are also really good about "losing" them), and the schools can be VERY threatening about it, without being very helpful.

desiree

Thank you for posting this- I think as mothers we have to go with our instinct. And after my son received his 2 month shots (which I felt pressured into because I didn't have the facts to back up my concerns) he spent the next week recovering from them. He was not himself for DAYS and I promised him I would never do that to him again. Now he is 14 months old and he still getting vaccines because I do feel that it's important for him to get them, but he's getting one at a time with at least a month between shots. We found a pediatritian that supports our decision completely and has helped me to devise a schedule that makes everyone comfortable. He won't get his MMR until after the age of 2, and he will get a separate measles, mumps, and rubella- not the super shot. I want his tiny body to have time to recover between doses of toxins, and I'm just thankful that I've known enough to do the research that brought me to this decision. You've given me some great information. Thanks and good luck- you're very brave and have my respect!

Amy

Oh mama! I so feel your pain. Our 4yo son was diagnosed with Autism and SPD at 25 months old. He had a seizure 30 days to the day after his MMR. I so wish I would have known then what I know now about vaccines. {{{{HUGS}}}}

Jennifer

Thanks for sharing your story.  We chose to not vaccinate based on what reading we did. So far our one year old has been nothing but healthy. Number two is due in April and we plan to avoid all vaccines again. We also plan to home school so we don't anticipate the public school fight over shots. Way to go giving them a fight, and hopefully (more importantly) something to think about! You're doing a great work. Blessings to you and your family.
Jennifer

Heather

Your path has been so rocky and your love for your children so evident that I wish my cyberhugs were real so you could feel the support and unconditional empathy I have for you and your family. You are a wonderful mother and an informed advocate for your daughters. Be proud of yourself and at peace with yourself over the tough decisions you've researched and made. I stand in awe of what you handle with such grace and dignity every single day. {{{{{hugs}}}}}

Angie Seaman

Hang in there. From one Mom to another - and from a Mom with a special needs daughter herself (she is 5), I can totally relate. My daughter was born with hypotonia and epilepsy so much of what you mentioned is all so familiar to us. OT, PT, SPEECH, and so on. Just wanted to drop in and give you cyber hug from another Mommy in similar shoes as yours. Keep on "keeping on." Big hugs to you and yours.
Blessings, Angie Seaman
www.angelicagracedesigns.com/blog/
www.angelicagracedesigns.com

Anne Kaelber

This is a well-written, clear history of your own experiences. I have friends who've just had a baby and I will be talking to them about their plans for their son!

My own son has shown signs of "high functioning autism" and/or Aspberger's for most of his childhood. I'm definitely going to sit down and see if I can trace any of his history and connect any old (!) notes on his vaccinations. My son just turned 16 and we've been home-schooling him since about 4th grade because fighting the schools got too hard!

I wish many blessings for your family as you fight to do what you believe is right for both your children. If I lived in the same school system as you, I would stand beside you and defend your choice 100%!

Anne.

Annie

Thanks for sharing. Just so you know they do have polio drops. It's the live vaccine - you have to have drops fairly often at the beginning - but you don't have to have the vaccine. I live in India and that's what most people use. We have a lot of Polio here.

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